Is this what you call support?

Sensoar, I am truly sorry that you are having a tough time. When I initially read your post, I was not going to respond because I didn't think I could say anything of use. I grew up in a household with someone who was hiv positive and most people tend to use avoidance to cope because they don't know what else to do. I'm sure your family did what they could think to do and would probably do more if you made it clear what you felt you needed from them. They may also be giving you space because they do not want you to see them worry. Unfortunately no one can do what we'd like to for you and that is to take the pain away completely. As far as your meds are concerned, have you spoken to your doctors or a counselor about other options? I'm sorry if this response wasn't what you were looking but I thought your post deserved something.

I don't think youre being ungrateful. Maybe you should just talk to your family. They probably dont really know how to be there for you. Let them know your needs and concerns. Be patient though.. this is just as hard for them as it is for you. I found out I have Herpes today and I have no one... This is a hard time in our lives and some support would help tremendously. You shouldnt go off your meds though...I know sometimes the side effects can be just as worse as the disease but talk to your doctor. Maybe they can prescribe you something for the nausea and diarrhea and other side effects. I really do hope things get better for you.

Hello, Thank you for responding to my post. I really am all alone as well. I have 5 siblings. Two of which don't even exchange xmas or bday cards. Two others are holy rollers ( no offense to those who are ). I have a younger sister that asked me how I'm doing once since I reached out to my family. It is just really frustrating. It is never easy to ask for help. Currently, I am out of my stomach medications, and my internet may be shut off soon. It just comes down to that I have to take care of myself. Like I always have. I am all alone in this state. I have no friends here, and my siblings all live in another state. Sigh...

I am sorry for you having to go through this alone. I really donot know what to say except I care. It is so overwhelming for yourself and for family and friends when you are dealt a blow by something. I understand your feelings about familys feelings but maybe you can open up to them about all by talking or writing. Maybe they are so overwhelmed they donot know how to handle it.
I myself know how overwhelming it can be when a tragic strikes. My husband has dementia for 2 yrs. and now parkinson and maybe another disease to go along with it. It is something that i cannot fix and i grieve about the loss on both of us. His 3 children donot come around but my son and his family live right next door and are a great comfort. Hope that you can find comfort in and about your situation. In Christs Love

I don't know what all is ailing you but it does sound like you need a med change. Since I don't know where you live I can't offer any advice about your finances. As far as you family goes, all I can say is talk to them and see what happens. I'm not a holy roller but ask them to teach you how to fish.